Covid long hauler here too. I got covid at a conference in late October 2022, and 2023 was my lost year. I’ve been a chronic allergy sufferer my whole life, and my body just seems primed to inflame like an Olympic cauldron at the drop of a hat. 2023 was so similar to your description - loads of specialists, all of whom said my tests were normal but also acknowledged that I probably wasn’t fine. Meanwhile, showering took all my energy, and looking at a computer screen made me immediately dizzy. So did driving on a sunny day. And I can’t even tell you what it did to my cycle, which now requires medication to maintain. Three years out, I can walk up hills that used to wind me, but I always remember the days when I had to stop every ten steps to catch my breath and slow my pounding heart. Hoping you feel some relief and always admiring your optimism. 💕
I am so glad to read this—it truly gives me hope. I want to be able to shower again without it being a major event! I was getting vertigo while driving, and still don't do much because i have such a slow reaction time. I've made very slow, incremental progress over the months, I know, but the time has just slipped by in a monotonous blur. (Thank god I have a window with a comfortable chair and visible seasons!) Thank you for sharing your experience ❤️
Thank you for writing this 💓 I’m also part of the chronic illness club, that no one wants to be in. My friend shared your post with me and it was nice to read something that deeply resonates with how the last 10 years have felt—which I often look back on thinking where did they go? I’m in a hard period with it right now, but have also had a lot of healing happen and am holding hope & belief that the same happens for you.
I wrote this last Friday and kept it in my drafts through the weekend, thinking it was just something for myself. But this morning I had some time to kill (before another dr's appt) so I decided to revisit it. It's hard to write about it for an unseen audience, but ultimately I decided to post because someone else might feel seen. So I'm very glad that it was shared with you and that it resonated.
Last week someone wished me "chronic wellness", which I think is the best sentiment I've heard in a while, and I hope the same for you ❤️
Sending a big hug (whether you want it or not, haha!)!! But seriously, just wanted to thank you on behalf of everyone for sharing this, and I fucking HATE whatever it is that makes you feel like you do. And I know you know this, but I'd take two-spoons-Mendy over most people anyday!! xo
Covid long hauler here too. I got covid at a conference in late October 2022, and 2023 was my lost year. I’ve been a chronic allergy sufferer my whole life, and my body just seems primed to inflame like an Olympic cauldron at the drop of a hat. 2023 was so similar to your description - loads of specialists, all of whom said my tests were normal but also acknowledged that I probably wasn’t fine. Meanwhile, showering took all my energy, and looking at a computer screen made me immediately dizzy. So did driving on a sunny day. And I can’t even tell you what it did to my cycle, which now requires medication to maintain. Three years out, I can walk up hills that used to wind me, but I always remember the days when I had to stop every ten steps to catch my breath and slow my pounding heart. Hoping you feel some relief and always admiring your optimism. 💕
I am so glad to read this—it truly gives me hope. I want to be able to shower again without it being a major event! I was getting vertigo while driving, and still don't do much because i have such a slow reaction time. I've made very slow, incremental progress over the months, I know, but the time has just slipped by in a monotonous blur. (Thank god I have a window with a comfortable chair and visible seasons!) Thank you for sharing your experience ❤️
Thank you for writing this 💓 I’m also part of the chronic illness club, that no one wants to be in. My friend shared your post with me and it was nice to read something that deeply resonates with how the last 10 years have felt—which I often look back on thinking where did they go? I’m in a hard period with it right now, but have also had a lot of healing happen and am holding hope & belief that the same happens for you.
I wrote this last Friday and kept it in my drafts through the weekend, thinking it was just something for myself. But this morning I had some time to kill (before another dr's appt) so I decided to revisit it. It's hard to write about it for an unseen audience, but ultimately I decided to post because someone else might feel seen. So I'm very glad that it was shared with you and that it resonated.
Last week someone wished me "chronic wellness", which I think is the best sentiment I've heard in a while, and I hope the same for you ❤️
I’m really glad it made it out of your drafts and found its way to my inbox.
Wishing you chronic wellness too — which is another thing that will stick with me like your post did.
Sending a big hug (whether you want it or not, haha!)!! But seriously, just wanted to thank you on behalf of everyone for sharing this, and I fucking HATE whatever it is that makes you feel like you do. And I know you know this, but I'd take two-spoons-Mendy over most people anyday!! xo